Policy advocacy lead

The Motor Neurone Disease (MND) Association is excited to be working in collaboration with the Neurological Alliance! Your time will be spent 3 days per week with the MND Association and 2 days with the Neurological Alliance.

This is a home-based opportunity with travel requirements to: MND Association offices in Northampton/London, and London/ Leeds for the Neurological Alliance.

We are looking for an enthusiastic Involvement Lead to play a pivotal role in shaping the direction of both the MND Association and the Neurological Alliance
As an Involvement Lead, you will work across both organisations to place individuals affected by MND and other neurological conditions at the heart of our respective initiatives. Your main responsibilities will include:

• Act as the subject matter expert on co-production and ensure its integration into service development and activities across both organisations.
• Collaborate with senior leaders to formulate tools, processes, and policies supporting the implementation of co-production and involvement strategies.
• Foster knowledge exchange with a network of organisations, including the Neurological Alliance, to share experiences and enhance peer-to-peer support.
• Develop an understanding of the challenges faced by people affected by MND and other neurological conditions, informing co-production activities.
• Recruit people affected by MND and other neurological conditions for co-production groups, forums, networks, and other relevant opportunities within both organisations.
• Ensure development and learning opportunities for those involved in co-production activities.
• Collaborate with teams to involve people affected by MND and other neurological conditions in the development of consultation activities, such as patient experience surveys.
• Continuously evaluate the impact of involvement activities, collecting data and evidence to showcase their value.
• Work with the Neurological Alliance fundraiser to develop bids for involvement work, including a new Co-Production Network

As an Involvement Lead, you will be at the forefront of driving positive change for individuals affected by MND and other neurological conditions. Your role will be instrumental in shaping the direction of both organisations, fostering a collaborative and inclusive environment.
What are we looking for?
We are seeking an experienced individual with a proven track record in delivering impactful engagement initiatives within the public, research, or charity sector. You will excel in advising on both strategic and operational aspects, utilising a variety of platforms to engage the public. Experience navigating complex stakeholder dynamics and fostering relationships with key individuals is essential. Strong ability to engage with diverse communities, you will bring excellent facilitation, communication, and organisational skills.
For full role responsibilities please view the job description located within the Recruitment Pack.
Our Benefits

• 28 days holiday, rising to 33 days after 5 years' service, plus Bank Holidays
• Access to UK Healthcare which includes reimbursement for dental appointments, eyecare, Health & Wellbeing screening and therapies
• Access to a 24/7 phone and video GP Service
• Life assurance
• Confidential counselling helplines
• Salary sacrifice schemes to include:Cycle to work & Buy and sell annual leave
• BenefitHub which offers lifestyle discounts and offers on everyday shopping
• Enhanced pension scheme
• Opportunities for training and personal development

About The Motor Neurone Disease Association
Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

About the Neurological Alliance

The Neurological Alliance is a unique and powerful coalition of 100 organisations, all of whom are committed to improving neurological treatment, care, and support across the country. As a coalition principally consisting of patient organisations, representing a broad spectrum of neurological conditions and charities of all shapes and sizes, our role is to harness the energy of this sector to ensure the one in six people living with a neurological condition in England access the support they need and deserve.
Important Information
Adverts may be closed before the deadline once sufficient applications are received. To avoid disappointment, please apply early.
We are committed to equality and value diversity. We are working hard to remove perceived and actual barriers to participation for people with and affected by MND, current and future staff, volunteers, and stakeholders.
We guarantee interviews for disabled applicants that meet the requirements of the role as part of our commitment to the Disability Confident Scheme. Reasonable adjustments can be made as required..
We request that recruitment agencies do not contact us in relation to this role.