Chief Executive Officer

Action for Pulmonary Fibrosis, the UK’s leading health and research charity for Pulmonary Fibrosis is seeking an inspiring CEO to lead strategic growth, advocate for patients, foster partnerships, drive fundraising, and shape innovative research initiatives, providing the visionary leadership to empower our community and transform care for those by pulmonary fibrosis.

Pulmonary fibrosis (lung scarring) describes a group of interstitial lung diseases where the lungs become progressively stiffer and smaller, eventually leading to low oxygen levels in the blood. Pulmonary fibrosis (PF) affects around 70,000 people in the UK. Progressive pulmonary fibrosis is a life-limiting disease. While trends in life expectancy are improving, no one can tell an individual exactly how long they will live, making our work hugely urgent for our community.

Action for Pulmonary Fibrosis (APF) is the leading national charity dedicated to enhancing the lives of individuals affected by pulmonary fibrosis (PF). We are a nationwide charity with a remote-based team and an HQ in Peterborough. Our VISION is to STOP pulmonary fibrosis in its tracks. Established in 2013 by people affected by PF, carers, and healthcare professionals, APF funds support programs (by far the major part of our work), invests in global research and supports other research initiatives, campaigns for improved care and diagnosis, and raises awareness of these diseases. Our pioneering efforts have transformed the landscape of PF awareness and care standards, empowering people and advancing research.

As our next CEO, you will champion the centring of people, drive strategic growth, foster existing and new partnerships, and enhance our fundraising efforts. Leading a dedicated team, you will shape and execute a dynamic five-year strategy, prioritising impactful initiatives to improve the well-being of people. This includes expanding outreach, enhancing care pathways, and influencing transformative change in partnership with stakeholders. You must embody innovation, ambition, collaboration, and resilience to advance our mission and drive positive outcomes for the PF community.

Key details:

Role: Chief Executive Officer (CEO) – Action for Pulmonary Fibrosis

Salary: circa £75,000

Contract: permanent, full time

Location: Peterborough – flexible working but on average, 2 days per week in the office

As well as a strong alignment with our mission, vision and values, you will demonstrate:

• Strategic and entrepreneurial thinking, providing clear direction and rigorous planning.
• Ability to lead, inspire, and motivate high-performing teams.
• Highly effective communication and interpersonal skills, fostering trust and maintaining a positive culture.
• Ambition and innovation in developing realistic and challenging plans.
• Judgement and decisiveness in tough prioritisation decisions.
• Strong ambassadorial skills, building strategic relationships with stakeholders.
• Effective organisational skills and ability to prioritise shifting demands.
• Sharp financial acumen in budgeting and resource management.
• Outstanding track record of strategic leadership, ideally within a national charity.
• Deep understanding of NHS structure, commissioning, and service delivery.
• Proven experience in influencing and developing partnerships with senior stakeholders.
• Sound understanding of service delivery, income generation, and fundraising.
• Accomplished in risk and crisis management and robust governance.
• Desirable: Some understanding of respiratory medicine and the needs of people affected by respiratory conditions and diseases.

If you would like to receive an Information Pack for this CEO role with full details, including how to apply, please send a confidential expression of interest by clicking Apply, which will send your details to our consultant, Jenny Hills at Harris Hill. She will respond with full details. For an informal and confidential conversation about this position, please contact Jenny via the same method with suitable times to talk.

Closing date for applications: 9am Monday, 13th May 2024.

Harris Hill Charities Recruitment Specialists operates an equal opportunity policy and commits to treating all of our candidates and jobseekers fairly. We welcome and encourage applications from everyone regardless of age, disability, sex, gender, sexual orientation, pregnancy and maternity, race, religion or belief and marriage and civil partnerships.