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SalaryThe role
As National Support Coordinator you will provide support to our members living with a rare neuromuscular condition, myasthenia, their families, and carers. You will work alongside three additional National Support Coordinators and a Benefits and Welfare Officer, ensuring our members receive the support they need, via telephone, zoom meetings and email.
We are looking for someone that is willing to work a Monday, Wednesday and Thursday. There may be the need to occasionally work during weekends and evenings and therefore there is a need to work flexibly when required. All evening and weekend work is agreed in advance.
Who are we looking for?
The successful candidate will have a minimum of 2 years’ experience of working within the charity/healthcare sectors or of a similar role.
A keen interest in or a knowledge/experience of charitable support provision is essential. We are a looking for an innovative self-starter to join our small national team of 15 staff. You must be an excellent communicator, with experience of using databases, ability to meet deadlines and work on your own initiative. if this sounds like you, we would love to hear from you.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness, as it is a little-unknown condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the illness.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including access to specialist benefits advise.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenia’s are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender, or nationality. Myasthenia gravis, ocular myasthenia, and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
- Generous holiday allowance
- Perkbox account (global benefits and rewards platform)
- Group Life Assurance after 6 months of service
- NEST workplace pension scheme
- Free inhouse staff benefits and welfare advice
- Investment in your personal and professional development
Candidates should submit their CV and covering letter.
PLEASE NOTE THIS POST MAY CLOSE EARLY IF WE FEEL WE HAVE ENOUGH SUITABLE APPLICANTS.
