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Form of work
SalaryWhy should you apply?
Through your experience and skills, you will be making a tangible positive difference to families and individuals in the UK and internationally with this rare, genetic, life-threatening, and life-limiting condition. You will get to know our friendly families well and build long lasting relationships.
We are a flexible, considerate, and caring employer who will be happy to agree flexible working hours to fit in with your family or other commitments.
We welcome and encourage applications from everyone regardless of age, disability, gender, or religion
Responsible to: Executive Director
Terms: Permanent (on passing probationary period)
Salary: £25k - £28K Full time equivalent, depending on experience
Benefits: Holidays: 27 days holiday + bank holidays (FTE) Pension: Min 3% taken from employee + 5% employer contribution. All work-related travel expenses covered.
Contract: Part time, 15 hours per week, 2-day flexible working pattern potentially increasing to 3 days when funds permit
Located: Homebased, with quarterly meetings in central London with our Executive Director. Occasional weekend work may be required to attend fundraising events or Trustee meetings
The CGD Society
Chronic Granulomatous Disorder (CGD) is a rare, life-limiting immune disorder, where children and adults get frequent bacterial and fungal infections, which can be serious and life-threatening.
The CGD Society is the primary resource for individuals facing a CGD diagnosis, offering essential information and support to families throughout their CGD journey. Our organisation is led by our dedicated and inspiring Executive Director who works tirelessly alongside our CGD Clinical nurse specialist, who is based at Great Ormond Street Hospital. While headquartered in the UK, we proudly support around 1,500 members across 77 countries, representing this global community with pride.
Key responsibilities
Community Fundraising
Develop and implement a comprehensive fundraising strategy to increase income through regular giving, donations, campaigns, legacy giving, corporate partnerships, and other fundraising initiatives.
Promote participation in major sporting and challenge events.
Provide supporters with the necessary materials and motivation to maximize their fundraising efforts for the CGD Society.
Send personal thank you letters and certificates to acknowledge donations and fundraising efforts promptly.
Address fundraising inquiries.
Maintain regular communication with key fundraisers and stakeholders.
Attend events to support participants when appropriate.
Corporate Sponsorship and Partnerships
Establish and cultivate relationships with companies to secure sponsorships for various projects, fundraising events, and other funding opportunities.
Form alliances within the charity sector to achieve shared fundraising objectives and create more appealing sponsorship proposals.
Grant fundraising
If funding permits a three-day working week, with training and development, prepare and submit persuasive funding applications to Charitable Trusts and Foundations to boost our core income.
Develop with the Exec Director a rolling strategy for such applications, building relationships with funders and defining compelling funding targets.
Digital Marketing
Lead the development and execution of social media content to increase awareness and income, utilizing optimal methods to reach target audiences and drive engagement.
Serve as a "brand guardian," ensuring consistent, cohesive, and well-thought-out messaging, tone, and appearance across all internal and external communications.
Source and maintain a repository of up-to-date case studies, photos, and videos on life with CGD, transforming these into media-ready stories for social media, newsletters, the website, and reports.
Create and distribute regular newsletters using Mailchimp and other communication tools for members.
Manage the CGD Society website (WordPress), ensuring it is regularly updated and engaging for our beneficiaries, collaborating with external suppliers as needed.
Support for Executive Director
Provide monthly reports to the Executive Director detailing donations, fundraising activities, and marketing KPIs.
Managing enquires during annual leave
Support for events, such as the CGD Society family weekends
Potential opportunity to progress role beyond fundraising with support from the Executive Director
Person specification
Must have skills
Experience working within a fundraising or digital marketing environment demonstrating a track record of maintaining and growing income for supporters and/or organisations.
Excellent supporter care experience knowing what is necessary to deliver a high-quality service to supporters and/or fundraisers.
Expert knowledge, experience, and confidence in developing and delivering creative and engaging social media content across a wide variety of channels.
Ability to create engaging graphic content using Adobe/Canva software.
Demonstrate empathy, active listening and effective verbal and written communication skills.
Copywriting – To have good written English with a flair for creative writing. You should be able to demonstrate examples of copywriting engaging, original and persuasive content.
Knowledge of Search Engine Optimisation (SEO), keyword research and Google Analytics.
Competent in Microsoft Excel, Word, and PowerPoint.
To be happy to work independently and be suitably motivated and organised to work from home.
Be strongly motivated in supporting those affected by CGD, whether through your own personal experience or professional interests.
Nice to have
Understanding and improving the effectiveness of Google AdWords to drive website traffic.
Competency with Microsoft 365 & SharePoint.
Experience or knowledge of a rare genetic condition would be advantageous but is not a requirement.
Generating income by writing compelling and impactful applications to funders and grant providers.
