Support Coordinator

We have a brand-new opportunity as a Lead Research Nurse at the MND Association. You will be at the forefront of creating and leading our Research Nurse Network programme within the MND Association.

This is a home-based role with travel requirements to Care Centres & Networks across England, Wales and Northern Ireland as required.

Your role will be pivotal in ensuring that everyone diagnosed with MND has access to the opportunity and support to take part in clinical research. To champion the diverse needs of people living with MND by working in a manner that facilitates inclusion and collaboration, within and beyond the MND Association. You will work with our Services & Partnerships Directorate, working closely with our research directorate and collaborating with internal and external stakeholders to promote our mission.
Key Responsibilities:

• Develop and implement an MND Association Research Nurse Network programme to support the delivery of the Association's strategic goals.
• Manage and support the research nurse network providing close liaison with the MND Association's Care Centre & Networks Programme.
• Ongoing evaluation of the research nurse cohort, ensuring maximum impact and benefits realisation. This includes close liaison and monitoring of the agreed financial contract and agreements.
• Develop a network of research nurses with specific skills, expertise, and objectives.
• Co-ordinate the induction of new research nurses. Develop training materials to support their ongoing professional development.
• Manage and support our research nurse network. Fostering close collaboration with Care Centre Networks.
• Establish and maintain strong relationships with Care Centres & Networks.
• Establish national strategic, and effective relationships at a senior level with key policy leaders in health and research. UK MND Research Institute and the UK MND Clinical Studies group
• Strengthen the identity of the MND Association nurses within national research organisations ensuring the MND Association is promoted at all opportunity.
• Evaluate and prioritise research nurse activities to maximise impact and value for the Association.
• Co-ordinate team meeting and support visits to ensure a cohesive network.
• Represent MND research nursing at national and international levels when necessary.
• Work collaboratively with internal departments to engage patients and people affected by MND research at a local and national level.

What are we looking for?
Expertise in Nursing: You will need to hold registration with the Nursing and Midwifery Council, coupled with considerable experience in clinical research.
Team Building Experience: You will develop a recognised network of research nurses with specific skills, expertise, and objectives. Experience of building nurse teams is essential.
Leadership Abilities: We need someone with strong leadership skills. You will drive purpose and direction within complex organisational structures.
Knowledge of Clinical Research: You will have comprehensive knowledge of UK clinical trial, regulations and experience in supporting clinical research capacity and infrastructure. Experience in neurodegeneration or life-limiting illness studies is preferable.
Service Development: Proven experience of service development and implementing large scale change. Ensuring continuous improvement in our approach.
Excellent Communication: You will be translating complex information to various audiences and representing our organisation at national and international levels.
For full role responsibilities please view the job description located within the Recruitment Pack.
Our Benefits

• 28 days holiday, rising to 33 days after 5 years' service, plus Bank Holidays
• Access to UK Healthcare which includes reimbursement for dental appointments, eyecare, Health & Wellbeing screening and therapies
• Access to a 24/7 phone and video GP Service
• Life assurance
• Confidential counselling helplines
• Salary sacrifice schemes to include:
• Cycle to work
• Buy and sell annual leave
• BenefitHub which offers lifestyle discounts and offers on everyday shopping
• Enhanced pension scheme
• Opportunities for training and personal development

About Us
Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.
We are committed to equality and value diversity. We are working hard to remove perceived and actual barriers to participation for people with and affected by MND, current and future staff, volunteers, and stakeholders.
We guarantee interviews for disabled applicants that meet the requirements of the role as part of our commitment to the Disability Confident Scheme. Reasonable adjustments can be made as required.
Important Information
Adverts may be closed before the deadline once sufficient applications are received. To avoid disappointment, please apply early.
We request that recruitment agencies do not contact us in relation to this role.