Head Of Policy And Public Affairs

The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.

The Head of Policy and Public Affairs is a new role that will lead the charity’s Policy and Public Affairs strategy to build a better life for anyone affected by Huntington’s disease. They will report to the Chief Executive and will work across all departments of the charity.  

The role will require frequent work in Westminster and Whitehall and elsewhere in the England and Wales. The post holder needs to be a self-starter and comfortable working with the most senior external stakeholders. 

The role will develop a credible and comprehensive evidence base and policy recommendations for the Huntington’s Disease Association. It will oversee a programme of external stakeholder engagement aimed at meeting our influencing goals and ultimately supporting the charity to achieve its vision of a better life for anyone affected by Huntington’s disease.  
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.

We offer great benefits including 25 days annual leave plus public holidays (pro rata for part time staff), a pension scheme with 3% employer contribution, a tax-free working from home allowance, a Medicash scheme, a flexible working approach, a supportive and positive working environment and fantastic learning and development opportunities.

We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.

The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.

Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, please upload a cover letter outlining your interest and suitability and detailing how you meet each of the requirements in the person specification along with a copy of your CV. Applications submitted without a CV and cover letter will not be considered.

Closing date for applications is 28 January 2024
Interviews will be held in London on 7 February 2024