Our care, information and advocacy service coordinate our support for families, providing advice and practical support to enable individuals to access the services, benefits and equipment they are entitled to. As part of our support, we also connect individuals with others affected by these rare conditions through our peer support networks.
Being based in Northern Ireland, you will ensure that service users receive a high quality of support and will assist them to access funding, equipment and care and support that they are entitled to. You will join a team that makes a real difference to the lives of the people living with muscle-wasting conditions, and their families, in Northern Ireland and across the UK. The role will be primarily home based, but there will also be a requirement to attend outpatient clinics within the region, attend home visits where appropriate and to support those living across the UK through the helpline and information inbox. Some travel will be required to attend meetings and events out-with Northern Ireland. You will work with both statutory and voluntary organisations, clinicians and health, and social care professionals to ensure that people living with muscle-wasting conditions get the care and support they need to live well and independently.
Please download the job description to see full role responsibilities.
About us:
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions. We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 110,000 children and adults in the UK. In the last three years, there have been more than 10 new treatments – we want to continue this work and need your help to bring in the funds that mean we can fund more research and support for families with a muscle-wasting condition.
Benefits:
We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We also offer a range of benefits including pension, life assurance, health cash plan, financial wellbeing and an employee assistance programme.
Interviews are likely to be held via Microsoft Teams on Wednesday 3 April.
*Unfortunately, due to resource capacity, we will only contact candidates that are shortlisted for interview. Therefore if you do not hear from us within 2 weeks of the closing date please note your application has been unsuccessful.